Chemo is in the house

Chemotherapy has officially begun.  So far it just feels like a fairly bad case of the flu.  I really can’t complain, considering it is chemotherapy, and it’s only for 5 days at a time.  I didn’t sleep very well Monday night, which was the first night I started, so I wasn’t feeling well much of the day yesterday.  Thankfully, my niece was able to take the kids for the day so that I could get some rest.  From the experiences that I have read online from other people, most of them say that the first 2 days are the worst, and then your body adapts….I guess.

After a week of processing the fact that this tumor is growing, I’m very at peace with our decision of how to move forward.  We are going to attack this thing from several different angles.  One of the things that becomes a challenge in treating cancer is that at some point, a lot of cancers will become chemo-resistant.  Even though cancer cells are a more fragile cell than normal cells, they are very smart.  They figure out ways to “hide” from therapies that are trying to attack them.  This is often why a patient will experience stability or shrinkage of their tumor, but then all of a sudden the cancer starts growing, again, even while on chemotherapy.  There is an inspirational story that you can read here, about a man that had the most aggressive brain tumor one can have (Glioblastoma), with a life expectancy of 6 months to 1 year.  This was in 1995, and the man is still alive today.  He ended up incorporating his own cocktail to treat his cancer.  He, much like I, was very involved in the decision making process of what his treatment regimen would entail.  The difference between what he did and what I’ll be doing, is that he incorporated a lot of different drugs that were being used to treat GBMs.  Since I don’t have a Glioblastoma, but a lower grade tumor, I wouldn’t qualify for most of those things, and I have chosen to try some “softer” therapies.  These  therapies have been shown to compliment Temodar, as well as offset the immuno-suppressant side-effects of the drug.  Boosting your immune system is very important for a cancer patient.  It’s ultimately your immune system that will win the battle against your cancer for you.  Because cancer treatments are extremely immuno-suppressive, I will do whatever I can to boost my immune system back up, through mostly natural therapies.

Scan Results

We received the finalized MRI results and the tumor has shown some mild growth.  Devestated?  No.  Disappointed?  Yes.  We haven’t been nearly as aggressive in the DMSO therapy since my last scan and in fact hardly did it in late November and December because of the holidays.  It probably wasn’t the best decision, but it’s hard to want to smell like DMSO when you know you’re going to be around a lot of people celebrating the season.  Who knows if that contributed to the tumor not remaining stable, but it is what it is, and we’re onto the next step!

 It is still presenting as a low grade tumor, which is some of the best news we could’ve received.  This tumor, as you’ve seen, is supposed to be a higher grade (3), rather than 2.  We have been so blessed that it has remained this way since beginning this treatment in June.

What’s the next step?  We have decided to start chemo on Monday.  The chemo is an oral pill and I will do it 5 days in a row, followed by 23 days off.  I will continue to do some natural therapies that will compliment the chemo, but also help off-set the side effects.  The most common side effects with this medication is headache, nausea, fatigue and constipation.  The latter, I’ve noticed, is the biggest complaint from people online.

We thoroughly remain confident that we can beat this tumor.  We believe that God will bring healing, but he apparently isn’t finished with this chapter in our lives, yet.

I’m waiting to hear from my neurosurgeon, Dr. Linda Liau.  UCLA hasn’t always concurred with my local radiologist on the reading of the scans, so I never consider the results truly official until I hear from her.  I’m hoping to hear from her sometime next week. 

We are doing well, otherwise.  We’ve had 2 very sick kids in the house, getting anything and everything that seems to be going around the school and the church nursery.  a.k.a. Ground Zero.  Just when we thought we were turning the corner with these colds, Tyler now has an ear infection.  Poor guys.  I’m happy to say that I haven’t gotten anything, yet, (aside from this tumor), so my immune system must be working well! 

Thank you so much for all of your love, prayers, emails, notes of support over the last few weeks.  I’ve said it before and Ill say it again.  It takes a village to get through a cancer diagnosis and all of the things that come with it.  I would never survive the agony without God’s grace and all of you investing in our lives in the ways that you have. 

I will post, again, when I hear more information.  I have not received the PET scan results, but based upon the MRI, I would think that the PET should correlate with the MRI results.  Until then…

Scan results

OK.  The preliminary results of the MRI is that the tumor is stable.  Yep…still there, but it’s not growing.  We were a bit disappointed, but it’s not growing!!!  And it’s still radiologically presenting as a low grade tumor, rather than a high grade, which is what it’s supposed to be.  So, I’m feeling blessed. 
I was bummed on Friday about this news, but my neighbor took me with him to the OSU/Cal game on Saturday, so it was quickly forgotten.  I’m having some major grin hang-time from that game.  The Beavs are SO fun this year.

I do have to say as a sidenote, though, that the BCS is the most screwed up system EVER.  I know this isn’t a newsflash for most of you, but honestly.  It’s ridiculous.  It’s either that, or Phil Knight has paid off so many people to get a team that hasn’t yet deserved to be in the polls, into the polls several times this season (and the past 5).  C’mon.

Thank you so much for all of your prayers, emails, phone calls, cards, etc…We are so blessed by all of you!  I’ll post more when we come up with a plan.  We’re still waiting on PET scan results and UCLA’s opinion on my MRI, so I’ll post those, as well.  Until then….

Scans

PET scan is tomorrow at 8:45 and MRI is at 1:15.  Stay tuned…

Good news!

I got an email from my doctor at UCLA today…..finally, and they think that the tumor is stable from the MRI in April. Yippee!!! They didn’t say that the tumor had grown at all, so we couldn’t be happier with that news. Dr. Liau told me that the board recommends continuing on the chemotherapy regimen that I’m on (I didn’t tell her what kind of chemo I’m doing), and to get a follow up scan in 3 months. If you’re wondering what treatment I’m doing right now, here is the schedule:

6 days of Sodium Bi-Carbonate, then alternating DMSO/Garlic and DMSO/High dose Vitamin C the next 6 days. I will be doing 4 total cycles of this treatment schedule, so 48 total days of treatment. This puts me out until mid October, so my naturopath will order a PET scan at that time to see what kind of progress we have made. I’m so much more hopeful with this round of treatment that we can get rid of this thing, then I was about the last round. The garlic throws a whole new dimension (and smell) in my treatment, because of the research that came out last year from NIH showing that garlic kills brain cancer cells instantly upon contact. I am also doing Rife and Acupuncture treatment with him once/week.

Have I told you how blessed we are? Your prayers and our prayers are being answered right before our eyes. God has blessed us with confirmation that this is the path on which we should be heading. All my doctors wanted me to do radiation back in May ASAP. Treatment that they told me would make me unable to do math any longer, because of the damage that it would do to my brain. I am so humbled by God’s grace and healing. And so humbled by all of you that lift us up in your prayers. Thank you so much!

Our second bit of good news is that we have football tickets in hand, and we get to watch the Beavers hopefully beat USC in only 2 weeks, 6 days. That would probably take an insane amount of prayer, though….although they pulled off the upset in 2006. Ahhh…..football.