So…..my scan today was very uneventful. That would be because I didn’t have one. Because I sprang this appointment on them at the last minute when I booked it a month ago, they were not prepared with enough contrast to inject in my body, which acts to light up any malignant cells during the PET scan. So at this point, I’m not scheduled to have my scan until August 8th, unless I can annoy somebody enough to have them make some earlier space for me. I did go ahead and schedule an MRI for next Friday, though, so that will be quite telling as to how effective this treatment was. Hopefully next time I blog about my scan, it will be because I actually just had one.
Charysse,
I have a mixed glioma (oligoastrocytoma grade 3) and have been working with UCSF and the Sutter Neuroscience Institute in NoCal since Jan 2007 – craniotomy, IMRT radiation followed by 7 rounds of Temodar. Doing great stable scans and several PETs. I network with lots of survivors and also chronicle my journey and consolidate all of my research in a library on my web site. I’m also a singer/songwriter (Contemporay Christian) and after reading your background wanted to drop you a line with my web site address and email – perhaps we can stay in touch.
Mark
Here with you sis. Love ya!